Dysport made me very ill

[Dysport Nightmare]

I received Dysport on April 12th 2010 at a dermatology medical spa office in Reno, NV. I was injected with the drug on my face three times. Prior to receiving the injections I was NOT disclosed the manufactures warning of the drug. The manufacture of Dysport clearly states on it’s warning to inform me the patient of potential side effects so I can make an informed decision if I would like to do their drug or not! Very unfortunate for me I was not given that opportunity until after the fact. The P.A who injected me handed me the warning on my way out the door, tucked my receipt inside and said, “Here is the directions to get your on-line $75.00 mail in rebate.” That was the only reference to the warning. I would not have taken the drug dysport had I known about these life threatening side effects including but not limited to the black boxed warning.

That was on April 12th 2010. Five days later April 17th 2010 is when my Dysport nightmare started and currently exists. I woke up with severe chest discomfort, unlike any type of chest pain I have ever felt. It felt like a heavy, tight, full of pressure, deep burning sensation with difficulty breathing, swallowing and cough. I went to work and barely made it through my day. Stayed in bed Sunday. Monday went to doctor and got antibiotics and cough syrup. Symptoms got worse during the first week and continued getting even worse for the next several weeks; body weakness could not stand up, loss of bladder control, extreme anxiety, fatigue, heart palpitations, insomnia, vision problems; blurry, double, unfocused, very sensitive to motion, including both light and sound. Very itense pressure in head. I started developing severe neuropathy in my hands, feet and limbs. Another major symptom I have is brain-fog, feels like I’m in a dream like state of mind and can’t come back to reality. This really disrupts my daily life and makes doing the simplest task seem monumental.

This is a very dangerous Nero-toxin that blocks nerve transmission and that effect can be spread and be felt throughout the body, gravely effecting ALL SYSTEMS .

All these symptoms continue on and off currently, they come in waves and last for extended periods of time. I believe this drug has entered my nervous system through my respiratory system and has permanently effected my chest. The nervous system can take up to two years to heal if it can be helped. Of all the symptoms that I continue to encounter I suffer most from my chest and upper respiratory system simply not working right. My lungs feel crystal clear I can only describe this as a mechanical type of failure. It feels like actual chambers in my chest walls are not functioning, I am short of breath and feel this heavy pressure 24/7, and still have difficulty swallowing. I constantly feel like I’m going to have a heart attack.

Luckily I was on a budget and could only get the injections between my eyebrows. I’ve learned looking at my treatment records from the P.A that she was going to inject it in places not even approved by the FDA. Knowing what kind of side effects I’ve encountered surely I would have been hospitalized at the very least had I gone through with it. She also noted on my record as I kept calling the office saying how sick the Dysport made me that it was “impossible” for the Dysport to have made me ill.

July 12th will be three months of this pain and suffering. I would really like to know how long other victims symptoms last for? Is there any remedies that really work? Have any doctors really helped?

[kwind]

I experienced many of the same symptoms you did after my botox injections in Dec. 09. I did not have as severe respiratory symptoms but head PAIN!! Brain fog, anxiety, severe muscle pain and weakness. It's been six months for me and the muscle pain and weakness has inproved as well as the anxiety but all the sudden the brain fog and severe headaches have hit. I've been in touch with several from the forum and too have the same symptoms. So far time is all that heals but it has been a year or more for most. Some days seem fine and then others are so bad. I hope your better but feel free to talk anytime!!

[katlady111]

My Botox experience was exactly the same as yours, with palpitations and panic attacks featuring most prominently. It was a horrific experience, made a million times worse by the fact that my doctors -- with only one exception -- kept telling me that I could not possibly be having cardiovascular side effects at such low dosages.

In any case, please rest assured that my recovery time was the same as that of the previous poster: about one year after my last series of injections, I emerged from my Botox nightmare as good as new. Today I am not exactly the picture of health, but none of my problems is attributable to Botox. Hang in there!! All will be well.

[Maria.B]

Iam in 10. months from my last botox treatment and still in shock and straggeling from the side effects.
Iam feeling better now but still hard to do the every day life.
I had the same symptoms as you All had here.Horrible experience.
Why I did not get enough information from my Botox doctor? Why he did not know about these horrible side effects?

I emailed for help to a leader UK neurologist doctor who had few articles back in 2002 about Botox.Check out the articles:

http://news.bbc.co.uk/1/hi/health/2499435.stm

http://www.telegraph.co.uk/news/uknews/1413927/Warning-on-long-term-side-effects-of-Botox.html

He told me he doesnt know about this kind of Botox side effects, however one of his articles is about the botox can cause you serious breathing problem.

I dont think that the manufacture of Botox realize what are these symptoms ,because nobody can understand this unless they experienced this.

Its going to be a huge problem in the world.As more botox users are out there as more victims come forward.

[Dysport Nightmare]

Hello Everyone
It's good to hear that we are having some improvement but still suffer major symptoms. I'm so curious if there will be any long term effects on our systems. Four months in that is long term to me! I feel my energy goes up real high and than fatigue crashes down, andrenaline surges?? My breathing is still seriously challenged. My vision problems are sensitive to motion and from the side view as things go by, hard to focus and think clearly about what i'm seeing. I get startled very easily and get very sharp tingles on my body. Any of these symptoms can cause head pressure and make sounds so loud in my head I have to lay down right away. The pain and numbness in my hands and feet really bothers me when i'm resting them on a surface, I will get a "dent" on my hand that last for a long time and really hurts. I guess really my only improvment is my energy and attitude and the fact that i'm no longer bed ridden by this awful side effect. I am absolutely devastated that with all the forums like this on-line doctors and experts on the subject refuse to consider people like us and are stories! Thank god and all of our strengths that we are hear today to speak out on this and hopefully prevent someone else from making the biggest mistake of their life!

[elnaz11]

hi everybody
i'm happy to hear that u have some improvements.
for me it has been 6 months from the injection and i've improved alot too.
especially in the last month i think my improvement was great,i dont know if the botox is wearing of itself or doing some exercise helped me.
i started to go 2 the gym from 2weeks ago,at first it was really hard for me and i could just do that for half an hour but now i stay in gym for 1 hour or more.
i still have a very mild anxiety with myself but it doesnt bother me alot.when i wake up in the morning i feel more normal,and i dont feel my heart beating in my stomach or my ears...
i recommend u to do the exercise,cuz the dr told me that it increases the metabolism of the body and takes ur mind off that for awhile.
i dont know how much longer i will have it,but hope the full recovery for all of us....

[elnaz11]

OMG,last night was like a real nightmare for me.i couldnt sleep at all.
i thaught i'm getting back to normal but suddenly it came back again.i didnt expect that at all.becuse i didnt have nausea for the last 2 months and now again it's very severe and has made me very concerned.
i have lost my appetite completely as well as my hope.
i dont know how much longer i should suffer,but i hope there is still an end to this nightmare...